The updated ALS App supports people with Amyotrophic Lateral Sclerosis (ALS) in documenting their disease course from home through structured digital self-assessment and the capture of ALS-related information. The App is available in English and now also offers Swedish and Finnish versions, supporting broader use across countries and research networks.
Key Offering:
The ALS App supports patients with ALS in longitudinal tracking of their disease course, self-documentation, and participation in ALS research.
The key features include:
- Self-assessment using the ALS Functional Rating Scale-Revised (ALSFRS-R-SE)
- Display of disease trajectory with an ALSFRS-R-SE chart
- Display of the biomarker Neurofilament Light chain (NfL) with the NfL chart (where available for study participants)
- Scan function for documents such as doctors’ letters, reports, and other documents
- Photo function for ALS-relevant images
- Calculation of the Body Mass Index (BMI) by entering height and weight
- Participation in surveys for ALS research
Together, these updated features and additional language versions enable remote digital self-assessments across countries, languages, and research networks.
How to get started:
Download the ALS App from the App Store or Google Play.
Register free of charge with Ambulanzpartner at: https://register.ambulanzpartner.de/patient
Log in and begin documenting your disease course from home.
Please register for free with Ambulanzpartner to use the full functionality of the ALS App.